I thought I had a picture of them sleeping but I guess I had already put the camera away. I may have been asleep as well and just dreamed it...

Last night we spent about 4 hrs in the emergency room... Avangeline had not been herself all day Sunday and when I picked her up Monday after work, Pam stated that she had been in a very bad mood. She felt clammy to me and when I groomed her hair with my hand her fontanelle (soft spot) felt squishy to me. So that pit of your stomach feeling hit me and I called the neurologist. He had given me a phone number in the hospital, kind of, he rattled it off really fast and I wrote it down. So when I called the gal who answered the phone was shocked "where did you get this number" she asked. She told me she would talk to Dr Katz and call us back. An hour went by and no call, so I went on to MOPS with the thought that if it were life threatening she would have responded with something like "go the the ER you idiot..." So 20 min into my meeting Dr Katz called himself. He asked what was going on and decided he wanted to see her so he told me to meet him in the ER. No rush he said I have calls to make and a kido to see in Peds... So arrangements were made for the big kids and Jason and I headed over to the hospital. They got us right in, and we only waited for Dr Katz for like 20 min. He had them draw blood, and take a urine sample. I will tell you that they hurry around in that ER a lot faster than they do at St Francis. I don't know it is because they are busier or if they just hustle more. Avangeline did awesome, she did not even cry when they took her blood. The lab gal did a good job, and got lots of blood so they were able to do all of the tests that were ordered. Nothing showed up in her blood, so Dr Katz wanted a CT scan, this is her 2nd. It was clear. The only thing they could find was what Dr Katz said was puss in her urine, and he pet her on Amoxicillin.

Current Med List:

Kepra, and Trileptal (seizure meds)

Prednisolene (steroid)

Previacid (for reflux from Prednisolene)

Fluconazole (treating thrush caused by Prednisolene)

Pyridoxine (B6) some seizures are caused by low b6 in little kidos

and now Amoxicillin (possible infection)

There is something fundamentally wrong with giving a 4 mo old this much medicine but I guess if it will fix the problem it is necessary.

So today Avangeline has been in a better mood, although still clingy and having a hard time sleeping.

Please keep praying for her. Pray that the spazams stop. Pray that this will all be over soon...

Picutre perfect!

Ezra did not have school Thursday or Friday of last week so he went to Pam's house for one of those days. She managed to get an awesome picture of all 4 of them. Now this is a feat as they are constantly picking at each other, fighting over something, or acting a fool.

Rolling Over!!!

OK this is a new thing for me to try, but I had to share. As some of you know I do not have audio on my computer so I have no idea what is in the background, or what is said. So hopefully nothing embarrassing. Just check out our big girl!!!

Bad hair day!!!

Last Tuesday we had our 3rd EEG. She did so good, they need for her to sleep to get good readings. So when they were scheduling her appointment I told them that she usually takes a good nap between 9-11 am. So they got us in at 9. She fussed while the tech put the probes on her head, they have to scrub them with this gel that has some abrasive stuff in it, she said her head must be really sensitive, but after that she went right to sleep. It did not take as long as I thought it would. When they had the info they needed they asked me to wake her up, well as you can tell by the picture that did not work. We have heard from the nurse that there is still seizure activity, but that the Dr was very surprised at how good everything looked. So we go Wednesday to see the Dr and find out where to go from here.

Avangeline is doing really well, she has developed a predictable sleep pattern, is smiling, cooing, laughing and as of Saturday... Rolling over! So she is developing quite well, Praise the Lord! We are still seeing her seizures but not as often, continue to pray for complete relief of these spasms. The Lord is at work here.